Dear Sir/ Madam,
Children First, The Society (CF) which is registered under the Societies Act of
1860 is non for profit and established with the primary objective of being the voice
of children suffering from Guillian-Barre-Syndrome (GBS) and various other diseases
pertaining to the ICU ward at the National Institute of Child Health. The Society
aims to achieve public awareness of the Disease with the objective of helping patients,
their care givers and medical support staff the ability to make informed disease
management choices in order to improve their quality of life.
Guillian-Barre-Syndrome is an inflammatory disorder of the peripheral nerves of
the brain and the spinal cord. It begins with a rapid onset of weakness affecting
the muscles of the leg, arms, chest, face and eyes. Treatment involves the use of
IVIg (plasma formed through a combination of antibodies) to battle the disease.
However, the treatment per child varies from Rs. 120,000 to Rs. 180,000 making this
treatment very expensive to fund on our own.
In addition to this, last year we adopted the entire ICU ward at this hospital.
Since then we have completely renovated the ward providing them with an entirely
new electrical system, new air conditioners, heaters and a brand new ventilator.
CF every month gets the ward fumigated, cleaned and is responsible for the
maintenance of all the equipment making these children get treated in a safe and
a clean environment to ensure a speedy recovery.
Your support and contribution is much needed to help raise funds for this Disease
and other Diseases related to the ICU ward of this hospital so, Children First,
The Society can make a difference in the life of these precious children.
As Nelson Mandela said: “There can be no keener revelation of a society’s soul than
the way in which it treats its children”.
The Society will be organizing our yearly Eid function at the hospital. If
you wish to attend please email us at the address below. May Allah bless us
all in this auspicious month of Ramadan. Aameen.
Arshia Ahmed Khan